The kids have had an amazing summer :-)
We started administering uncooked cornstarch at bed time to the kids as a method of preventing low blood sugar in the morning and let me tell you that it has been AMAZING!!!!!!
There has not been one episode of low blood sugar since then (except for when Ocean had to go in for an ultrasound and was fasting). We have also noticed that the kids have been going through mild illnesses (cold, cough ect.) like a normal person fighting it off. A few days and it's gone. Far are the days spent in the ER with the kids developing pneumonia, bronchitis or ear infections because of a simple cold. *Knock on wood* If it would only be the same for gastros.... 'Tis the season for it, and that will be something we will need to deal with as it will come. Probably meaning more hospitalizations to come unfortunatly.
The last genetic test for Beta-Ketothiolase deficiency came back negative. We were expecting that. We are pleading our case for the third time to the genetics board to have Exome Sequencing done, and hopefully it will be the last.
As for myself... sigh, with everything that has happened this year, mentally, I haven't been doing so hot. But I am slowly reccovering from that. Taking more time for myself and treating myself to more outings with friends. It's important for any mother I think. We all existed before our children and as much as we live only for our kids now, we deserve a little "me" time :-)
So here's to a positive future!
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